Catching Our Rainbow

Hoping for a rainbow after the storm…

Frustrated

on February 1, 2013

Remember how I said that hubby has Crohn’s and he will be starting Hu.mira to help him? Yeah, that hasn’t happened yet. He got his prescription on the 9th of this month, and he will finally get his medicine on Tuesday, an entire month after he first went to see the doctor. First, we had to wait for him to get his TB test, which he couldn’t do on a Thursday or Friday because it has to be read two days later and can’t be read on Saturday or Sunday, so it was a whole week before he was done with that. Then, we had to deal with the insurance company and prove to them that he actually needs this medication and no other medication will work. Then, we had to contact the drug company because our co-pay was $1,000 for two shots (which is a month’s worth of medicine). Seriously? Why the hell do we even have insurance if it doesn’t actually make it so we can afford our medical care?  Anyway, the drug company has a co-pay assistance program that will basically waive the cost of the co-pay so that we only have to pay $5 for every month. Once we finally got that worked out yesterday, we have to wait until Tuesday because the shots are overnighted from a special pharmacy. It was too late to send it yesterday, and they don’t ship Fri-Sun, so they are sending it Monday and we should get it Tuesday.

Meanwhile, my big bad husband who never complains is constantly wincing in pain and has even cried quite a few times because he hurts, he’s tired, and he’s frustrated with the whole process. I really just want my husband to feel better and do the things he loves (like respond to fire calls), and I feel so angry and helpless about this whole process.

Not every day has been bad, though. He had a really good weekend, and he even initiated some sexy time on Sunday for the first time in a month. Consequently, I ovulated the next day, so we’re not writing off this month like I had previously thought. Maybe we’ll get a one-hit-wonder baby this month… I’m not getting my hopes up, but I am keeping my fingers crossed.

Anyway, if you are a praying person, please pray that hubby starts feeling better ASAP after he starts his shot on Tuesday. The first time he takes it, he actually has to take four. Then he takes two the next time, then just one every time (he’ll take it twice a month). If you are not a praying person, please send healing vibes and good juju his way.

On a completely different note, make sure to email me your project before tomorrow if you want to participate in the Little Miss Craftypants Challenge. It doesn’t have to be anything big or complicated, but we would love to have as many people crafting with us as possible!

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6 responses to “Frustrated

  1. April says:

    Ugh, what a mess. I’m glad he’s finally getting the meds, though!

    And good luck with your one hit wonder! :)

  2. Insurance companies and the entire medical system is so hard to work with. I’m glad that your husband is finally getting his medication and hopefully it starts to work very soon!

  3. I take Humira for my psoriasis and psoriatic arthritis. It’s a great medication for me and I hope it helps your DH. Sorry about the frustration.

  4. Belle says:

    Insurance is a bitch to deal with, especially with medications for autoimmune disease b/c they come at such a high price tag. I’m so glad you were able to wave the copay, though! It makes you wonder why they price them so dang high to begin with if they could wave $995, though!

    And I’m sending your husband all the good thoughts I can muster. I have friends with Crohn’s and know how devastating it can be. I really hope this medication is his magic bullet and that he will find relief soon!

  5. Praying you and your hubby!!!….and for a one hit wonder ;) keep us updated!!!

  6. Crohns is so hard and insurance is a pain the ass. A friend of mine has Narcolepsy and one of the drugs she needs was covered by her old insurance, but when her company got new insurance it went up to $8000 a month. A MONTH. She was in a panic. Luckily they had a copay assistance program too, and I think it went down to less than $20, but seriously? Who can pay $8000 a month for just ONE drug-and she has to take four or five others.

    I hope husband feels better pronto, like yesterday. I have IBS which is maybe 1/10th of what Crohns is, and I know it can make me miserable.

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